Former Little Mix singer Jesy Nelson is calling for a reform of British newborn screening regulations after her 1-year-old twin daughters, Ocean Jade and Story Monroe, suffered irreversible nerve damage from a late Spinal Muscular Atrophy (SMA) diagnosis.
According to the National Health Service, SMA is a rare genetic condition that causes muscle weakness and worsens over time.
>>> Jesy Nelson Campaigns for Newborn Screening Laws After Twins' SMA Diagnosis
Nelson revealed that due to the late diagnosis, her twins began medical treatment too late and she has been informed that they will never walk.
The singer captured the medical discovery during filming for her upcoming Amazon Prime Video documentary series, titled "Jesy Nelson: Life Changing," which is scheduled to stream in the United Kingdom starting July 17.
In a filmed consultation, a doctor confirmed the genetic test results to Nelson. "The genetic testing came back positive for Spinal Muscular Atrophy," the doctor said.
Nelson held her head in her hands upon receiving the news. "I can't believe this is happening," she said.
The upcoming documentary series captures the former pop star sobbing and struggling to process the implications of the rare genetic condition on her family's future.
"I don't know how I'm going to do this. I feel like I'm going to be heartbroken for the rest of my life," Nelson said.
Nelson has launched an online campaign and continued updating her social media followers about her daughters' health status as the broadcast date approaches.
